On November 24, 2023, I will remember 9 years of being a cancer patient. I am grateful that I am here! But rest assured, there is not a day that goes by that I forget I am a cancer patient.
I often wonder if people with other chronic medical conditions are so acutely aware of their disease and think about it and how it changed their lives. I would think they would, as having a chronic medical or mental health condition changes who you are. You are no longer disease-free or safe from setbacks or reoccurrences. Having a chronic condition is always on your mind.
If I am honest, I have to say I am still coming to terms with being a cancer survivor. I am still on a mission to educate people (patients and caregivers) about the importance of having a voice in their care, asking questions, doing research, and taking good care of themselves. My mission also includes helping all healthcare professionals and stakeholders understand how their work impacts the people they work with at every entry point of the healthcare system. I try my best to bring awareness that the healthcare system is built for the healthcare system and not the people who use it and that we need to work together to change that.
My life changed on November 24, 2014, when an Emergency Room doctor told me, ‘You have a brain tumor’.
Today, nine years later, I am 80% better. I am more aware of my body and look at things more closely when strange things happen. I guess I am waiting for the other shoe to drop, and I want to be alert to address the next crisis.
Being a cancer patient has taught me to live life every day, follow my dreams and goals, and do what I can to help others navigate the complex system we call healthcare.
Thank you to all who have followed me since my first post on July 22, 2015. I write a post each week because of each of you. I value your insights and comments.
I re-read my first post and smiled as I realized I have stayed true to the goal I set out to accomplish, of which I am proud. This Blog has been cathartic for me as it has allowed me to share my experiences and help others on their journey. I hope you have taken away a few nuggets that have helped you, a family member, or a friend.
I will be off next week as we travel to see our families for Thanksgiving. So, as I close, I want to wish you and your families a Happy Thanksgiving.
When you and your families sit around your table, say a prayer and remember the people in Israel and Ukraine and all the others who are at risk in hot spots around the world as well as within our own country and your household. Pray for those who are sick, struggle to make ends meet, and carry burdens that impact them daily.
Best to all of you!
Anne – those of us living in your world are so blessed that you “came back”.
Yes – those of us who have heard the word “cancer” truly do remember the exact moment in time we heard it. As horrible as that news is, many of us think of it as a turning point – a wake up call, a second chance to begin living the lives we really wanted to live instead of the one we had defaulted to.
We are all better for the fact that you have shared your journey. For that, I say thank you from the bottom of my heart. ❤️❤️❤️
You are an amazing person. I admire your strength and determination. Thank you for these wise words. Hope you have a great Thanksgiving.
Thank you Anne for sharing your amazing journey with us, your public. We have been with you in prayer every step of the way! Wishing you continued strength and wellness AND a wonderful, blessed Thanksgiving
Thank you for sharing your journey.
Being with family on holidays is a blessing as many folks don’t have family near enough to travel or maybe have to work.
Blessings to you and your family
Hi Anne,
I never thought I would be in the position I have been in for two years already. Disabled from a failed back surgery and also the finding of cancer.
I remember when I found out about your brain tumor, it really shook me. I’m so blessed to have you as colleague and friend. You have helped me and my kids so much through some tough times for us. I have been a case manager for 20 plus years, but as any person needed the support of others to keep moving forward. Always , Carol
As an autoimmune disease and mold illness survivor, I deeply resonate with your sentiments. Unlike your diagnosis date, my moment of recognition is 6/2/18, the day I survived medical malpractice due to an unnecessary heart procedure caused by an initial misdiagnosis. Your presence, friendship, and wisdom in our lives are a blessing. So glad you made it through and are here to spread the word of the importance of having a voice in you own care. Thank you for all that you do. Have a safe trip & happy holiday season!
Hi Anne, I am blessed to have you in my life. You are my angel. If it helps, want to share with you that I went through my third back surgery last month. So far, I have pain, numbness, tingling, etc. I want you to think and take advantage of you can move, walk freely, and travel, please, do it for me.
God bless you,
Thank you for sharing! You are a true blessing.